Sunday, January 25, 2009

Just a wee update . . . =0)

Isaiah had another appointment this past week - with his regular allergist. It was more of a follow-up appointment from our appointment with All Children's a few weeks ago (has it really been that long already????). =0) The appointment went well and she really liked the idea of using Xolair injections if we can't stop the frequent trips to the ER - and she said the insurances should see it that way as well (after all, one ER visit less is still cheaper in the long run with a shot of Xolair every two weeks than the alternative).

Isaiah is still having GI issues, so she and I discussed putting Isaiah back on Gastrocrom - a med he was on as an infant for the constipation issue. She was shocked to hear that it actually helped and was more than willing to try it again. Well, he has been on it for a few days (we picked it up on Friday, I think), and his severe constipation isn't, well, as severe. =0} It's getting better. It can take up to 2 weeks for the stuff to really work, but considering we are already seeing improvement, it shouldn't be too much longer before the little guy will be back to normal in that area. His poor tummy, though! I really am amazed at how fast the stuff is working. It's a little different this time around, though - instead of a powder, it's already mixed in little respules that you mix with a little bit more water. The bad thing is that he has to take it 4 times a day, but if it helps . . .

She also put him on Azithromycin, again. So far, there haven't been any reactions (thank, you, God!!!!), and he only has a day or so left of it. Anyway, she prescribed it for his rashes (which are infected, again). There is just no way to keep those things clean! Actually, I don't think it has anything to do with keeping them clean, necessarily. Yes, he gets baths and I put medications on his rashes . . . and he gets tons of lotion (Vanicream mixed with a bottle of nasalcrom), but you can't put bandaids on the rashes and they aren't supposed to be covered (unless they are on parts of the body that obviously are supposed to be covered). His little foot is just one of those areas that's hard to control. He doesn't like to wear socks (ever since the wet wrap treatments from last year), and shoes make the irritation worse. So, he goes barefooted. His feet are the first to infect - go figure. =0) By the way, it's not the type of infection that's oozy and disgusting, it's just very red, more irritated than just a rash, and scaly . . . sorry - I tried to keep it as non-disgusting as possible. =0)

So far, his foot is still red. Bright red. The other rashes are about the same as well. There were only two spots that were infected, but the Muripocin (the ointment prescribed to treat mild infections) wasn't helping. The Elocon works pretty well, but we can't use it on broken skin . . . hmmmmmmmmmm. Maybe, soon, we can start using it again and the rash will clear up a bit.

I am also looking into shoes that have a bit more ventilation. They are a tad expensive, especially for a child, but I think they'll be well worth the money if they help his little feet. I feel so bad when he has to wear shoes. =0( Sandals are nice, but not when your feet are broken out in a rash - that adds to the infection issue. His Cars shoes are nice, too . . . but again, the infection issue. These shoes with ventillation should solve that - they are ventilated, but not so much so dirt can get into the shoe. They are ugly, but Isaiah will definitely like the bright colors . . . I hope I can find them in white or something! =0)

Anyway, I just wanted to give you a little update on how things are going. Hopefully I will remember to post my "Not Me," Monday! post this week. =0) And a wordless Wednesday . . . and a Flashback Friday . . . =0)

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