Wednesday, September 10, 2008

Okay, so here's what's going on . . .

. . . Isaiah has been having pain. Mostly at night, but I'm not sure if that's because he's not occupied (like he is during the day) or if it's because that's just when it bothers him. If he does have pain during the day, it's probably the reason why he just sits and stares or he's clingy.

We went to the doctor for this on Monday, and the doctor said to try Tylenol and Benadryl as needed. It is helping at night, but not all night. I don't know why it is taking so long to go away, but I will say that last night was better than the past week or so.

The other thing that happened at the doctor's office was that the doctor decided to observe Isaiah. He had been observing Isaiah for about 45 minutes when he came in to see Isaiah. During the appointment, the doctor was asking a lot of questions about Isaiah's behavior and his speech (which, Isaiah has good and bad days with his speech). He suggested that Isaiah should be observed by a specialist from Child Find (well, originally it was another group, but they don't work with children once they are 3). The doctor is concerned that Isaiah may have high-functioning autism and wants to make sure Isaiah receives the benefits of early intervention.

While I must say that this was shocking, I will also say that even if Isaiah were to have high-functioning autism, he is still the same child in my eyes. If this is the case, then I am happy that they have discovered it now instead of after he is in school. Either way, the observation was going to happen so that Isaiah could get help with speech therapy (and start the process of the whole IEP thing).

I would be lying if I didn't say that I cried a little - and felt totally overwhelmed. But I can say that in speaking with a few friends who have experience in this area I feel more peace about all of this. Of course, I can't exclude the peace that God brought either. At this point, whatever God's will is, whatever He has planned for Isaiah, I am more than okay with it.

I still haven't heard from the lady that will be observing Isaiah, but I was told that they are extremely busy this time of year. Hopefully I will hear from her soon. It is possible that all of this (the speech issues and even some of the behaviors and mild development delays) are caused by the masto . . . at least his speech problems. I have been just thinking that since he was a boy, his speech just hadn't matured yet. However, I read that mastocytosis can cause speech problems . . . it's a long explanation, but one place it's explained is on I have heard that Isaiah has a "thick" or "heavy" tongue from someone who is a speech therapist . . . I met her at a birthday party. I didn't really think too much about it then. Either way, Isaiah will be okay.

He is surprising me with the things he is able to do - like add, he's learning to subtract, he counts to 30, knows all of the alphabet and even what the letters look and sound like, can read a little, he is learning to spell (and he can spell wolf thanks to Peter and the Wolf - which he LOVES to act out), and he can even tell you the first letter of some words. He's amazing! Now, we just have to work on the whole potty training thing, the dressing and undressing himself thing, some fine motor skill things . . . =0)

Isaiah is such a little blessing! He is so happy, most of the time. =0) Come on, he is a toddler . . .eh-hem . . . preschooler. I think his terrible twos are starting a year or so late . . . =0) Who knew? But he is such a wonderful little guy to be around. When you're sad, he can make you laugh. When I need a hug, he's got the best hug of all! When I'm tired, he loves to attack (he loves to tackle and sit on me). =0) He's the coolest preschooler I know (but of course, I'm biased)! =0)

Well, that's all for now . . . =0) I will post an update on my dad after his next appointment.



Carla said...

((Hugs)), I hope Isaiah gets help and that he just blossoms as a result of it--diagnosis or not!

My daughter had similar issues-sensory issues, speech issues, developmental delays...but is doing really well! She is in 1st grade (half homeschooled) and doing amazing. She is reading chapter books, writes stories, etc. Smarty pants like Isaiah.

Gavin was early with everything and his speech if charted would be like th 100th percentile! Total opposite of Chelsea. Super social, super articulate, non stop amazing how different they come out : )

Both have masto and both are not at all the same. Bottom line though is that both are doing well in those developmental areas now. I pray that Isaiah will too.


Brian Jones said...

Hi Kelly!! Thanks for your encouragement with the comments you left. You are an inspiration to Michele and I. You have had an incredibly difficult road with a variety of different things and you continue on. I am so thankful of your devotion to Jesus and the life and sweet fragrance that flows from your life. You may think you have missed out on some things in your life because of the circumstances that have come your way, but the Lord has seen your response and your tears and His heart is moved by you. You haven't missed anything!!! Eternity is the GREAT equalizer. All my children have been healthy for the most part and my life has been fairly normal with some fruit to show, but I'll probably be your janitor in eternity. You continue to store up treasures in heaven by the QUALITY of the life you lived here on earth. I know I don't know all of the things about your life but I really feel like God is so pleased with you. I love your blog too. I have been reading it for about a month now. Do me a favor and email me at I don't have your email in my laptop!!!
Brian Jones

Michele said...

Oh Kelly! You are an amazing mom! I am so blessed to know you! I love your whole family and miss you all terribly right now! Tell Chig and Millie I said hello and please send me a video email sometime! Love you always!