Friday, June 4, 2010

Quick Post . . . =0)

I know, you're thinking, "quick post? Yeah, right!" =0)

Maybe you're right . . . I should think realistically. =0)

Anyway, Isaiah had an appointment in St. Pete this morning. We started our trip yesterday and encountered severe storms in Orlando - almost constant cloud-to-ground lightening, blinding rain, loud thunder, aquamarine patches in the sky, hail . . . but we arrived safely without incident (God is our protector).

The Allergy/Immunology/Rheumatology Clinic shares a floor with Nephrology, Hematology, Oncology, and Nutrition at All Children's. We usually see some really sick kiddos there - it always tugs on my heart and makes me thankful that Isaiah is in as good of health as he is in. Seeing their faces just breaks my heart. One particular case, today, just really got to me. Isaiah did not want to be there, today - he doesn't want any more sticks. =0( So, as we were going back for the appointment, he was saying, "NOOOOO!" One young lady (who was maybe 13 or so) commented that she didn't blame him, she didn't want to be there, either. She had come out of remission and was "losing" her battle with cancer. It broke my heart. I wanted to give her a hug so badly and just make everything okay for her. Thankfully, she does know Jesus - I know that He can make everything okay for her. Better than that, He can make everything great for her. Until then, I pray that she doesn't have to feel pain and finds peace, comfort, and healing through Him; the only one who can provide it for her. I didn't catch her name, but please keep her and her family in your prayers - God knows who she is and that's the important part.

Isaiah is doing well, just the usual flushing and such (and not sleeping, leg pain, the usual for him). He has developed petechiae, again. I noticed it yesterday morning and it has gotten worse since then. The doctor saw it and has ordered the usual blood test just to check. He has quite a bit more of it than he did last time. He has patches on his tummy, on his shoulders, neck, under his arms, on his upper arms, upper legs (with newer spots on his calves), and his tushie. At least it's not itchy like eczema. =0) While the doctor was examining Isaiah and his dots, he told her, "you have the peh-tiki-way on your back!" =0)

Because of all the swelling that Isaiah has been having, she also ordered a test just to check his kidneys . . . just to make sure they're working the way they're supposed to. He has never had a UTI or anything, so I'm sure that one will be just fine. She just wants to make sure - she's rather thorough.

Apart from that, it was just a regular appointment at the AIR clinic (I think that's so funny - Allergy/Immunology/Rheumatology = AIR). =0) The doctor finished the documents needed for school this year. Just in case you missed the school discussions, Isaiah's doctors do not feel that school is the best option for him right now - at least the going to the building part. Basically, the school district needed the doctor(s) to fill out a form stating why they want him on homebound school for the next year. All of that is completed and ready to be sent in. =0)

I have already started the sign-up process for K-12 (I was worried that homebound, which offers a teach twice or so a week, wasn't going to be beneficial for Isaiah). K-12 seems to offer the best option - allowing Isaiah to work on a computer for some of the time, meet with a teacher every day (online - web cam), and learn on his level and at his own pace.

Well, I think that's all for now . . . it's beginning to storm outside, again. =0} Ah, life in Florida during the summer. =0)

1 comment:

stitching under oaks said...

thanks for the updates kelly! both on Isaiah and Chelsey. God is doing great things. Praying all comes back good with Isaiah's bloodwork and that his flushing and rashes clear up! Have a wonderful weekend.