Saturday, April 18, 2009

You're SO not going to beleive this . . .


Isaiah anaphylaxed again early this morning - while he was sleeping. He handled it all very well, though - God's hand resting on Him again. Isaiah barely cried when I gave him the Epi, and fussed a little when he was given yet another IV (his third this week, and 5th poke this week . . . apart from the 2 Epis). Isaiah continues to amaze me with how well he is handling all of this - of course we know that it is God's hand. I even felt more peace and didn't shake when I gave him the Epi this morning. It's such an awesome thing to feel God's peace and comfort in the middle of something so frustrating and painful.


Isaiah's reaction was very similar to the last one, with a twist - he would become rigid and throw his head back to catch his breath. Those are just the details, though. I really have to say how amazing God has been throughout all of this. It would be nice to know why Isaiah is going through this, but I don't need to know why as long as God is there with us. Just last night Isaiah was singing a song about people trying to fill the void - the place where Jesus is supposed to fill. He got to the place in the song where the lyrics change to, "Some people try to find it in the arms of Jesus, that's where I found it . . ." It made me cry - my baby boy knows who is carrying him through all of this. He knows his Jesus is right there with him. How awesome is that???

As far as the physical plan of things, Isaiah is now on long-term steroids to control the amount of anaphylaxis episodes he goes through in a 12 month period. We had two options: Prednisone or Xolair. Prednisone has some nasty side effects; Xolair could be worse - especially with Isaiah's sensitivities. There is also no guarantee that insurance would even cover Xolair for someone as young as Isaiah (it is only approved for patients 12 and older). Honestly, I am more at peace with the steroids right now than I initially was . . . God's hand yet again. Of course, it would be absolutely fine with me if God would just touch Isaiah and heal him right now - all in His time, though. Through Isaiah, God has taught the doctors, nurses, and myself about Himself. God is so amazing!

I also want to mention that it is awkward to walk into the local ER and have the staff know who you are . . . when you aren't employed by the hospital and don't visit just because . . . of course, one of the nurses just happens to be one of my student's mothers . . . and another is my boss' husband (I think I saw your husband on Tuesday, Tracy!!). =0) It's also strange to begin to recognize the EMTs - seriously, the guy remembered us. There is humor in all of this, really. It's also an awesome opportunity to introduce all of these wonderful people to Christ, if they don't already know Him.

Well, I will keep you posted on my little man. =0) We should hear from the GI specialist next week with the biopsy results. We should also hear from Isaiah's allergist in St. Pete next week as well (on Monday). Isaiah has an appointment in St. Pete on April 5th, but there is a chance that can change considering the recent events. It should be fun trying to schedule two appointments around each other . . . two appointments that are about a 2-hour or more drive away from each other (St. Pete and Orlando). =0)

Oh yeah . . . my dad comes home tomorrow!!! =0) In case you didn't know, my dad was in MD for the past 3 weeks (okay so 2 weeks in MD and 1 in WV). I know all of you in MD have enjoyed my dad being there, but we need him back here!!! =0) (We miss you, Ye-Ye!!!) Isaiah heard that my dad was coming home tomorrow and I guess misinterpreted that for today . . . he ran to the back porch and began yelling, "Chiiiiiii-iiiiiiig! Chiiiiiiii-iiiiiiiig! Where are you?" =0) He was disappointed to hear that he won't be here until tomorrow evening. =0)

4 comments:

Daniel Walker said...

Joanne, Adriana and I are praying for Isaiah, and the rest of the family. Great pictures on the blog. Say hello to everyone for us. Dan

Daniel Walker said...

Joanne, Adriana and I are praying for Isaiah. Great pictures on the blog. Send our greetings to the rest of the family. Dan

david and heather said...

I can't imagine the frustration you are handling! i'm praying God will keep you and your little guy close in His arms, and we'll see healing come! Bless you! (And we love seeing your dad up here, but i guess you can have him back :) love, heather & david

Sneaky Momma said...

Sounds like you have had your hands fuller than usual with your little man lately. Praying for you....